My maddening battle with chronic fatigue syndrome: ‘On my worst days, it feels almost demonic’

我与慢性疲劳综合征的折磨之战:在最糟糕的日子里,感觉几乎像是恶魔附身。

The Audio Long Read

2026-04-06

34 分钟
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I suffered with my mystery illness for decades before gaining a diagnosis. Could retraining my brain be the answer? By Hermione Hoby. Read by Alby Baldwin. Help support our independent journalism at theguardian.com/longreadpod
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  • This is The Guardian.

  • Welcome to The Guardian Long Read, showcasing the best long-form journalism covering culture, politics and new thinking.

  • For the text version of this and all our long reads, go to theguardian. com forward slash long read.

  • My maddening battle with chronic fatigue syndrome.

  • On my worst days, it feels almost demonic.

  • By Hermione Hobie, read by Albie Baldwin.

  • Croydon secondary school I attended in the late 1990s.

  • The deputy headmistress was a stocky woman with a military haircut who patrolled the corridors

  • in voluminous outfits patterned in shades of brown.

  • The outfits were much discussed, not charitably, by the teenage girls in her charge, as was her voice,

  • which made you think of a blunt knife being drawn across a rough surface.

  • 30 years later, I can still hear that terrible voice refer to my mystery illness.

  • In truth, the deputy headmistress never actually spoke those words.

  • They were included in a typed letter she sent to my parents concerning my prolonged absence from school.

  • Still, the indicting force of five syllables is as distinct in my ear as if she were looming over me.

  • I was 11, and after coming down with a normal-seeming virus, I simply hadn't got better.

  • Instead, my system seemed to have become stuck, sunk into some grey, unchanging state.

  • I had a headache, a sore throat and swollen lymph nodes, body pains both dull and sharp, fatigue and weakness,

  • plus something I later learned went by the name of postural orthostatic tachycardia syndrome,

  • a faintness and momentary blacking out upon sitting or standing up.