My dad, his ‘incurable’ disease, and hope at last

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  This is The Guardian.

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  Today, finally, a treatment for one of the cruelest diseases.

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  Are you ready then, Josh?

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  Shall we do this?

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  Let's do it.

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  This is Josh Holiday.

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  He's the Guardian's North of England editor.

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  My old job.

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  I've known him since he moved up to join my team.

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  We hit it off straight away.

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  Always the first on the dance floor at the newsroom Christmas parties.

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  Once we turned up in London with Gallagher Brothers masks and DJ'd a set of Northern classics.

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  No Southern Sissies allowed.

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  But behind the dance moves and the jokes, he had a secret.

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  I hadn't really told anyone, even my best friends didn't know about my dad.

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  But that was one of the main reasons I wanted to leave London to be closer to my dad.

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  Josh's dad, Phil, has a devastating neurodegenerative disease,

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  which for the past 17 years has been robbing him of his voice, his independence and his mobility.

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  And Josh was terrified that he had it too.

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  Birthdays were always a really tricky time for me.

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